Cystic fibrosis (CF) is a rare, progressive, and life-threatening genetic disease that affects approximately 30,000 people in the United States. It is caused by mutations in the CFTR gene, leading to the production of thick, sticky mucus that clogs the lungs and digestive system, resulting in severe respiratory and digestive problems. Daily management often includes airway clearance techniques, inhaled medications, and enzyme supplements to aid digestion. ​U.S. Food and Drug Administration

A significant breakthrough in CF treatment came with the FDA approval of Trikafta in 2019. This triple combination therapy targets the defective CFTR protein and is effective for patients aged 12 and older with at least one F508del mutation, which accounts for about 90% of the CF population. Clinical trials demonstrated that Trikafta significantly improves lung function and overall quality of life for many individuals with CF. ​Wikipedia+3Lurie Children's+3U.S. Food and Drug Administration+3Wikipedia+2U.S. Food and Drug Administration+2Lurie Children's+2

To learn more about cystic fibrosis and support ongoing research efforts, visit the Cystic Fibrosis Foundation.

When my youngest daughter, Amelia, was diagnosed with cystic fibrosis, everything in my life shifted. Facing what could be a life-threatening disease made every other fear seem small—including the fear of tackling a big project like writing and creating a book. Suddenly, following my childhood dream didn’t feel impossible—it felt essential.

If it weren’t for my incredible mother, Nancy Fichthorn, who encouraged me to channel my energy and hope into something creative, Sammy’s Adventures in Ocean City, NJ would never have come to life. I am forever grateful she lived long enough to celebrate the book’s success with me.

Today, it’s my dream to pass along the same spark of courage—to children and adults alike. In every school visit and talk I give, I share not just Sammy’s story, but practical steps anyone can take to follow their own dreams, no matter how big they seem.

I’m also proud to share that 10% of every book’s proceeds are donated to the Cystic Fibrosis Foundation, helping to fund research, support families, and bring us closer to a cure.

Thanks to the support of our amazing readers, over $2,000 has already been donated—and we're just getting started.

Nancy Fichthorn, the best Mom I was blessed to have, who inspired so many children to follow their dreams as an elementary and preschool teacher. She is the reason we created the book.